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Experiences and Attitudes of Patients With Terminal Cancer and Their Family Caregivers Toward the Disclosure of Terminal Illness

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Author(s)
Young Ho YunYong Chol KwonMyung Kyung LeeWoo Jin LeeKyung Hae JungYoung Rok DoSamyong KimDae Seog HeoJong Soo ChoiSang Yoon Park
Keimyung Author(s)
Do, Young Rok
Department
Dept. of Internal Medicine (내과학)
Journal Title
Journal of Clinical Oncology
Issued Date
2010
Volume
28
Issue
11
Abstract
Purpose:
We investigated the experiences of cancer patients and their family caregivers who became aware
that the cancer was terminal, how they became aware, and how they felt about disclosure of
the information.
Patients and Methods:
In this cohort study, we administered questionnaires to 619 consecutive patients determined by
physicians to be terminally ill and to their family caregivers.
Results:
A total of 481 patients and 381 family caregivers completed the questionnaire. A majority of patients
(58.0%) and caregivers (83.4%) were aware of the patient’s terminal status. Approximately 28% of
patients and 23% of caregivers reported that they guessed it from the patient’s worsening condition.
The patient group was more likely than the caregiver group (78.6% v 69.6%) to prefer that patients be
informed of their terminal status. Patients informed of their terminal diagnosis had a significantly better
quality of life and fewer symptoms and had a lower rate of emotional distress than patients who
guessed it from their worsening condition. Younger patients and patients who paid the treatment costs
themselves were significantly more likely to want to be told when their illness was terminal. If the
patient paid the treatment cost and was employed at the time of the cancer diagnosis, the family
caregivers were more likely to prefer disclosure of terminal illness.
Conclusion:
Most patients with terminal cancer and their family caregivers preferred disclosure, and patients who knew
of their terminal diagnosis had a lower rate of emotional distress and a higher health-related quality of life.
Keimyung Author(s)(Kor)
도영록
Publisher
School of Medicine
Citation
Young Ho Yun et al. (2010). Experiences and Attitudes of Patients With Terminal Cancer and Their Family Caregivers Toward the Disclosure of Terminal Illness. Journal of Clinical Oncology, 28(11), 1950–1957. doi: 10.1200/JCO.2009.22.9658
Type
Article
ISSN
0732-183X
Source
http://ascopubs.org.proxy.dsmc.or.kr/doi/abs/10.1200/JCO.2009.22.9658?url_ver=Z39.88-2003&rfr_id=ori:rid:crossref.org&rfr_dat=cr_pub%3dpubmed
DOI
10.1200/JCO.2009.22.9658
URI
https://kumel.medlib.dsmc.or.kr/handle/2015.oak/33759
Appears in Collections:
1. School of Medicine (의과대학) > Dept. of Internal Medicine (내과학)
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