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Does the new Korean term for epilepsy reduce the stigma for Korean adults with epilepsy?

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Author(s)
Sang-Ahm LeeSu-Hyun HanYang-Je ChoKeun Tae KimJi-Eun KimDong Jin ShinJong-Geun SeoYoung-Soo KimHan Uk RyuSeo-Young LeeJung Bin KimKyung-Wook KangShinhye KimSoonhak KwonJoonsik KimSunjun KimHyo Jeong KimSo-Hee EunYun Jung HurSun Ah ChoiMi-Sun YumSoyoung ParkJee Hyun KimGha Hyun LeeYoung Mi KimKyoung Jin HwangEun Young KimGyu Min Yeon
Keimyung Author(s)
Kim, Keun Tae
Department
Dept. of Neurology (신경과학)
Journal Title
Epilepsy & behavior : E&B.
Issued Date
2019
Volume
102
Keyword
DepressionDisclosure of epilepsy diagnosisEpilepsyKnowledge about epilepsyRenaming epilepsyStigma.
Abstract
Purpose:
The purpose of this study was to evaluate differences in stigma, disclosure management of epilepsy, and knowledge about epilepsy between patients with epilepsy who recognized and did not recognize the new Korean term for epilepsy.

Methods:
This was a cross-sectional, multicenter study. The Stigma Scale-Revised, the Disclosure Management Scale, the Patient Health Questionnaire-9, and a questionnaire assessing knowledge about epilepsy were used. The set of questionnaires had two versions, using either the old or new name for epilepsy. Multivariate logistic regression analyses were used.

Results:
A total of 341 patients with epilepsy and 509 family members were recruited. Approximately 62% of patients felt some degree of epilepsy-related stigma. Mild stigma, severe concealment of epilepsy diagnosis, and increased knowledge about epilepsy were independently identified as factors associated with recognition of the new term in patients. Recognition of the new term was more prevalent in patients and family members with higher education, female family members, and family members having patients with younger age at seizure onset and shorter duration of epilepsy. There were no significant differences between the two types of questionnaires. About 81% of patients and 93% of family members had a positive attitude about renaming epilepsy.

Conclusion:
The use of the new Korean term for epilepsy (cerebroelectric disorder) increased knowledge about epilepsy but did not reduce stigma and concealment of epilepsy diagnosis in Korean adults with epilepsy. Higher education may be an important factor for knowing the new term in patients and family members.
Keimyung Author(s)(Kor)
김근태
Publisher
School of Medicine (의과대학)
Citation
Sang-Ahm Lee et al. (2019). Does the new Korean term for epilepsy reduce the stigma for Korean adults with epilepsy? Epilepsy & behavior : E&B., 102, 106719–106719. doi: 10.1016/j.yebeh.2019.106719
Type
Article
ISSN
1525-5069
Source
https://www.clinicalkey.com/#!/content/playContent/1-s2.0-S1525505019310753?returnurl=null&referrer=null
DOI
10.1016/j.yebeh.2019.106719
URI
https://kumel.medlib.dsmc.or.kr/handle/2015.oak/42629
Appears in Collections:
1. School of Medicine (의과대학) > Dept. of Neurology (신경과학)
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